Blogs that didn't get posted

Wed. 19 Nov. Petite Mal seizures were diminished but still present.EEG showed little change but EMG showed a critical deterioration of muscle reflexes. The doctors started to slowly raise her dose of Topomax from 25 mg to 75 mg over a few days. They also began an IVIG therapy which included gamma globulin, that part of the blood that contains the most antibodies, in the hope that it would stimulate her nerve and muscle connectors.

Thurs. 20 Nov. This is the second day of treatment and guess what, it is working! Mary woke up singing along with the radio and asking for food. Her voice is still very soft but there is definite improvement in alertness and muscle control. Everyone is pleased and much more hope filled.

Friday 21 November. On day 3 of treatment Mary awakes and freaks out her physical therapist with her muscle progress. She then "screams" to use the toilet. Screams is in quotes because it is a very inappropriate word because since Mary is unable to create enough decibels to scream as we know it. However, the nurse told her that unfortunately she's not ready yet. Now stop and think about that...... Today for the first time in ages Mary stayed awake from 2:30 PM to 1100 PM watching the British version of "Who's Line is it anyway?", "Being Julia", and "Phantom of the Opera" which at our house she refused to watch because she said that she didn't like the movie. Go figure.

Saturday 22 November day 4 of the medication. Mary continues to wow the doctors and nurses with her ability to touch her nose (for what reason we can only imagine), demand food, toilet, and call friends and family on the phone, none of which she can do muscularly yet but we hope soon because she is beginning to get very bored. Ah.....dah! But, the large muscle control is coming back in small baby steps.

Keep those cards, letters, prayers, positive thoughts, and curiosity about touching her nose coming.

Thanks, Jack & Sue